Recently Karen Chelcun Schreiber (Founder of No Stomach for Cancer) started a webpage dedicated to Hereditary Diffuse Gastric Cancer (HDGC) which strongly focuses on CDH1 mutation as well as the most recent research regarding HDGC. She works with Dr. Parry Guilford (Discovered the mutation and continues to do research for CDH1 mutations).
The mission statement:
“To support Hereditary Diffuse Gastric Cancer (HDGC) translational research that leads to improvements in the health and well-being of those affected by HDGC, and to provide relevant, reliable information and resources to help individuals and families understand their risk, make informed decisions, and advocate for themselves.”
I think this is such a great organization as the funding and donations to this group go directly to research for HDCG. My hope is that there will be a better way to prevent HDGC for people with CDH1+ mutations than removing your stomach in future years.
Check it out: