Post op week 10 – It’s on like Donkey Kong!

As I sit here eating my 4th ‘meal’ of the day, I cannot believe how fast time has gone by!  It’s already August 1st.  I have been a person with one less organ for ten weeks.  You wouldn’t really know that I dodged the stomach cancer bullet if you saw me walking down the street though.  Well, unless I was wearing a bikini.  And yes, I still plan on rocking that bikini.

During the beginning of the week, I had extreme fatigue.  I am  not sure what caused it but it felt like I hadn’t slept in days.  I have a feeling it was just fatigue that was building from last week activities that had finally caught up to me.  Since it wasn’t getting much better, I took it super easy yesterday and today I feel a lot better.  I guess my body was forcing me to take it easy.  I’m still working on figuring out my new normal.

I’ve also had a harder time eating this week because of the stricture issue.  See below for a better image (I was able to get a hold of my actual X-ray from July 8th).

Barium Swallow - July 8, 2014.  Stricture less than 5mm.  Width of join should be as wide as espohagus.

Barium Swallow – July 8, 2014. Stricture less than 5mm. Width of join should be as wide as esophagus.

Unfortunately, it is worsening each day and at this point, I feel like I’m almost back to square one.  The gurgle after swallowing has returned and I’m back to making trips to the washroom.  Boo!  But, there is light at the end of this tunnel!

On Wednesday, I went to follow-up with my surgeon.  After discussing my eating issue and having issue getting booked for my next dilation they told me that I should be receiving a call from the office for my appointment on Tuesday or Wednesday.  It was glorious news.  It really stinks when you are able to eat for two weeks and then the problem starts to slowly return and there is nothing you can do about it.  It’s like giving a kid a double scooped ice cream cone only to have it fall on the ground immediately after the first lick.  We’ve all been there.  My surgeon let me know that I shouldn’t be surprised if I have to go back 5-6x to have it dilated.  She said that eventually it will stay open but she’s not sure what causes it to stay open.  I am going to will it to stay open after it’s dilated.

We also discussed my restrictions (because I bring it up EVERY time).  I am an impatient patient.  I am now cleared of ALL restrictions.

It’s on like Donkey Kong.  Look out world here I come!

I left that office feeling like a million dollars. That is one step closer to returning to my new normal.  On the train ride home, I started planning my gym routine.

Since Wednesday, I have been doing some minor gardening in our front garden because there are some plants in there that I definitely did not plant.  Even though I only last half an hour, it was great to get out and clean it all up.  I also went grocery shopping and carried a basket around the store to build up some arm strength.  About 10 minutes in, I realized this was a bad idea and ended up kicking it along the floor.  I also have a lot less incisional pulling which I believe is from general healing as well as breaking up the adhesions from challenging my body to move in different ways.

I received the call today that I will be going in on Tuesday for my next dilation.  Brandon is going to take the day off to take me to my appointment since I need to have an escort.  It will be a nice way to spend our two year wedding anniversary together.  At least I will be able to eat a celebratory dinner!

On that note, I want to send a quick shout out to my friend Blair who suggested a great idea for eating cereal.  Just separate the milk and cereal.  Now why didn’t I think of that?!?

Happy Civic long weekend for all you Ontario people out there!  Everything is coming up Rachel.



One thought on “Post op week 10 – It’s on like Donkey Kong!

  1. Pingback: Whooaaa We’re halfway there – 6 Month post op | Cytosine Deleted – Life with the CDH1 genetic mutation

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s